7 years ago I met a boy online. We talked for about a month and went on two dates. I really really liked him but then the guy who I ended up being with for 3.5 years came back into my life and Tom kind of faded away. Last week he found me on Facebook. I asked him what made him search for me and he said:
"I searched for you because of the mug (I painted him a mug with his name on it). I’ve thought of you every day because of the mug. I have no idea what you’ve really been up to, but i made things up. So you’ve been traveling to europe and sitting on the river painting, you’ve taken a glass-blowing class in canada, you’ve had shows filled with works relating to what’s going on in your life at that moment, you’ve crashed a car, you went for a walk and cried about someone, you planted flowers on a windows-ledge pot. At least, those are some of the things you did in your life in my head. :) "
Unfortunately he still lives in Chicago. I’m going to be there in August so we’re going on date #3 then but tonight he said that him and his dad were talking about coming to LA this summer to visit his brother and he said “maybe I’ll have to sneak away to give you a kiss.” So hopefully date #3 will happen sooner than later. Life just never stops being interesting…
So I had a lupus dr. appt today and she said the new drug will be ready in 2 weeks BUT (of course there’s a but) it will take about 2 months for UCLA to figure out the insurance stuff. Once I start taking it, it will take 6 months for it to start working. I am supposed to call her in 3 weeks to see if she has anymore info and then my next appt is 6 weeks from today. Soooo this all means that within a year I will be a new and vibrant woman!
In 2004, depressed and sickened with lupus, I felt myself spinning lower and lower. When I found out about a study concerning a new lupus drug, I wrote to an address provided in an advertisement and long story…
Oh, wow. All I can visualize is House saying, it's not Lupus. Which reaffirms my estimation that I am a terrible person.
On a related note, I have been reading a book called "When the Body says No" by Gabor Mate (my new main mang) and it's pretty interesting. I don't recall it talking about Lupus but the stress/disease connection is really interesting particularly of the auto-immune type (ALS, cancer).
I certainly hope the medication works out for you. When will you get to take it?
Yeah, I was diagnosed in 2003.
Someone showed me a montage once of House saying It’s not Lupus over and over and it really pissed me off. If feel like it turned lupus into a joke. So I’ve never watched that show. (and you’re not a terrible person!)
I’ll have to check that book out, lupus is an auto-immune disease.
I’m not sure when I can start taking it. I have a lupus appt on Monday so I’ll ask her about it. My Dr was involved in getting the drug approved. Hopefully we won’t have to wait long for it to come out. It’s done through an IV which takes about an hour and you go in to get it once a month. It will definitely be a different experience. I’m going to feel like I’m getting chemo or something! I am already on a drug (methotrexate) that is used to treat cancer! Thanks for the well wishes.
“On Thursday, Goodreads will announce that it has acquired another start-up, Discovereads.com. It uses machine learning algorithms to analyze which books people might like, based on books they’ve liked in the past and books that people with similar tastes have liked.”
Finally they’ve done it but they don’t accept new memberships yet.